Remember last week when I said there was bad news on the horizon about Cait's Lyme treatment? Well, I didn't know how bad. At the time, I thought we might
have to pay about $1500 a month out of pocket to continue the one drug that has shown any signs of working. That now seems like chump change. For the next week alone, we've been told we need to pay $854 for the drug, plus at least $90 for nursing supervision. Which, multiplied out, is more like $4000 per month.
After you get your breath back, you may ask "Why?" (Possibly in less polite terms. God knows I swore a blue streak when Cait first called.)
...slight interruption - I am, as usual, multitasking. I'm on the phone with various companies trying to haggle, sell my soul, alter my citizenship, or otherwise find a better price. And I was just on the phone with one of those online Canadian pharmacies with a slightly CLUELESS operator who said, "Oh, that's 27.38 for 100 grams," -- 50 days worth -- at which I practically began crying tears of joy. And then she said, "Oh, that's the wrong medicine. Sorry. It's $385.85 for 10 grams." And I wanted to puke...
Anyway, back to why. Well, the reason is our stupid medical care system. Our insurance will no longer pay for the drug -- the ONLY thing that has worked for her in the past three years -- because she's been on it too long. Does this make any sense? Not to me.
We've tried the patient assistance program from the drug manufacturer. Nope. Cait makes too much money. Well, at this price, we'd have to pay almost $52,000 for a year's worth of this drug. Let me tell you, Cait, a public school teacher, does NOT make anything near that amount.
So I am fuming, and scared, and frantically researching anything I can to see if there's a way to make this work.
I HATE our health care system. It only works if you're healthy. And wealthy.